Both my son's have Type 1 Diabetes and it seems more and more
kids lately are developing this mystery disease. But what Is Type 1
Diabetes? According to the Junior Diabetes Research Foundation, they
simply explain it this way:
"Type 1 diabetes (juvenile diabetes)
can occur at any age, but most commonly is diagnosed from infancy to the
late 30s. In this type of diabetes, a person's pancreas produces little
or no insulin. Although the causes are not entirely known, scientists
believe the body's own defense system (the immune system) attacks and
destroys the insulin-producing cells in the pancreas. People with type 1
diabetes must inject insulin several times every day."
When our
oldest, Russell, got sick, we had no idea what the symptoms where.
Honestly, we thought he was going through a growth spurt. But is just
wasn't right. He was thirsty all the time, soaked his bed every night,
lethargic and eating more then normal but losing weight. I took him to
the doctor and they did a simple urine test and checked his blood. At
the time his brother was only 4 months old and sleeping in my arms. As
soon as the tests came back, the Dr. told me I need to get him to the ER
right away! I called my husband and we raced to Children's Hospital. He
spent 1 night in the ICU as his blood sugar numbers where so high and
out of control.
We felt guilty waiting so long to take him in, but
honestly had no idea what was going on in his body. He spent 4 days
total at the hospital (they did move him to a reg. room after the first
day) so my husband and I could be educated on how to take care of him at
home.
A few short years later, his little brother Brian was also
diagnosed weeks before his 3rd birthday. He was showing the same
symptoms for about a week or so and so we used his big brothers meter to
check his blood sugar. Finally, while on Russell's 7th birthday, we
decided to take Brian to Children's Hospital as the blood sugar meter
kept saying "hi" (meaning his numbers where over 600). He spent 5 days
at Children's Hospital because he also developed a viral infection.
So
now we have two kids with Diabetes, two kits, two sets of insulin,
meters, syringes, test strips, etc. All the tools of the trade to manage
this mystery disease from home. But we do manage it. The kids have
taken it on as normal as brushing their teeth.
Both my kids are on
Lantus (long acting insulin) and Humalog (short acting). Every morning
they each get a shot of Lantus, units are different for each child due
to age and weight. The Humalog is given every time they eat food with
carbohydrates that fall within a ratio of their target blood sugar. For
example, at lunch, my youngest may eat food that ads up to 25 grams of
carbs, so if his blood sugar is within its normal range before he eats,
his shot will be 1 unit of Humalog. Same applies with his big brother,
just a different dosage ratio.
How do we figure out their dosages
for Lantus and Humalog? Every three months since the date of their
diagnosis, we visit the Endocrine Clinic at Children's Hospital here in
Seattle. Their Dr. takes a blood sample, much like their finger pokes
and that will tell her their A1C levels (A1C is a test that measures a
patient's blood glucose level over the previous three months that might
also help predict serious health complications like heart attack and
stroke).
They also download their blood glucose meters to get a
readout of their average blood sugars over the last few months. With
this information, she can decide where the peaks and lows are, and where
the Lantus and Humalog may need adjusting. Their Dr also has a computer
program on the hospital database that helps with the calculations as
well as "cheat sheets" we use for each child. You see. They many times
have different dosages for the Humalog for EACH meal during the day, for
EACH child. A chart for Breakfast, Lunch and Dinner (if they eat a
snack, for example, mid morning, I use the dosage for breakfast to treat
it if necessary).
We've been very lucky with Children's Hospital,
they've got the best Endocrine team there and have helped us weather
many storms through both boys dealing with illness or simply not able to
get their numbers under control.
This leads me to another thing
we have to watch out for, ketones. Or as we like to tell our kids, we
need to fight the "ketone monsters".
What are Ketones?
Ketones
are due to not enough insulin being available to meet the body's needs.
The 2 main causes are illness/infections (the body needs extra energy
to fight off a virus or bad cold) or forgetting to take an insulin shot.
There are other causes, but the primary ones we've had to deal with are
the two mentioned. Another bugger, which is worse, is acidosis.
Now
acidosis is the result of letting ketones get out of hand. Perhaps
insulin isn't available due to an emergency situation, or the person is
simply not taking care of their diabetic needs properly. See, it is not
high blood sugar that causes ketones or acidosis; eating sugar does not
cause acidosis. Ketones come from the breakdown of body fat. The role of
insulin is to shut off fat breakdown. Now if the stress hormones are
high or there simply isn't enough insulin, fat will begin to break down.
And the side product of fat breakdown is ketones production. In the
early stages, it can be tested with urine. But if left undetected,
ketones can also build up in the blood and eventually in the body
tissues. When it gets this far, it will result in acidosis (DKA).
For
example, my youngest spent a week at Children's Hospital when he got
the stomach flu last February. He was so sick; we couldn't get him to
keep any food or liquid down. Because he wasn't eating, his blood sugar
dropped low, and we couldn't give him insulin to deal with the heavy
ketones because he wasn't eating. So in turn, he was on an IV drip to
help rehydrate his little system as well as supply glucose for his body
to work with. Even the smallest amount of long acting insulin dropped
him low to the point the Glucagon wouldn't work (that is an emergency
glucose administered through as a shot to help the body draw stores of
sugar from the liver). But because we where able to get him in and on an
IV drip, he never got as far as DKA.
Our oldest son has also
developed ketones because of the flu and or a head cold. His body will
have really high blood sugars (only a couple of times has he had heavy
ketones and low blood sugars, luckily never needing to be admitted, but
did have an ER visit). So we follow a sick day management regimen and
different calculations according to how heavy his ketones are so we know
how much extra insulin he needs to get his blood sugar under control.
As with any illness, lots of fluids, especially water are a necessity
but even more so with diabetics.
So anytime my kids come down with
even just a sniffel, we're on them to check for ketones and watching
their blood sugars closely. We have test strips that can be dipped in
urine that show a color code to how light or heavy their ketones are.
Staying on top of their sick day management has prevented many trips to
the ER.
What can my kids eat?
Anything! What is so nice
about the insulin they're on; they're not restricted to how much food or
type of food they can eat. We do, however watch how much fat (limited
"fast food" and "junk food") and salt intake because it raises blood
pressure as well as threatens the circulatory system. The reason fat
restriction is very important because high cholesterol and diabetes are
two of the four risk factors for developing heart disease. (The other
two for developing heart disease is smoking and family history).
So
I make a lot of my own foods for home. I've posted many of our favorite
recipes at The Poor Chef website. I also input the nutrition
information on a program I use at home that gives me the carb amount on
home recipes per serving (FitDay.com). Another great resource for food
items, especially if you're eating out (most restaurants now supply
nutrition info) is a pocket book from Calorie King. I keep a copy in the
car just in case, trust me, having extra resources to go to in a snap
is so handy.
What about school?
Again, we are very lucky to
have a great school district who supplies a full time nurse. Nurse Alice
is the best. We have a system down for my oldest son Russell. I make
his lunch and provide all the carb info for what is packed. She just has
to add up what he's eaten and is able to use the "cheat sheets" I've
provided so she knows how much insulin to give him at lunch time. We
talk almost every day about his numbers so I have a complete log for
when it's time to go to the doctor. It's a team effort and I can use all
the help I can get. Brian isn't quite ready for school yet, but I know
he'll be well taken care of when it's time.
I can't say it's been
an easy road and wouldn't wish it on anyone. But if you're reading this
and have a loved one with Type 1 Diabetes, I hope the information has
been of some help. It's an ongoing education and we're so grateful to
live in a time where medical breakthroughs are happening all the time.
Who knows, maybe by the time my kids are in high school, there may be a
cure for Diabetes. Until then, we'll keep managing their care, not let
it get us down or hold us back from living a happy and normal life.
For more information regarding Type 1 Diabetes, please visit:
"Understanding Diabetes, A Handbook for People Who Are Living with Diabetes", by H. Peter Chase, MD (aka: The Pink Panther Book)
This Article is Written by Kathleen Schmidt (c) 2009
Kathleen Schmidt:
Domestic Goddess and Work At Home Mom
877-762-1450